dealing with pain and dysfunction



my new favorite typo

VULVODYNO.

ROOOOOOOOOOOOAR!

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Comments

  1. * Anonymous says:

    Hahahah I love this. Honestly, I usually need to joke about my vulvodynia or else I can’t mentally handle it. I am wondering, do you see a physical therapist or vulva doc in Ithaca? I am going to be at Cornell this summer and need someone good.

    Posted 7 years, 5 months ago
  2. Hey, there’s a pelvic floor physical therapist that’s associated with Cayuga Medical, her name is Christine Feely and she’s great. Her office is at Island Health and Fitness (Cayuga Med has space there) and you should give her a call. Enjoy your Ithaca summer–spending a summer here was one of the best things I’ve ever done!

    Posted 7 years, 4 months ago
  3. * Anonymous says:

    Hey thanks-

    I actually had just scheduled an appointment with her. Awesome. God I hope so badly she can help me! Another rando question- I am not going to have a car this summer and biking is unlikely. Did you take public transportation to appointments at all? Like is that available in the area?

    Posted 7 years, 4 months ago
  4. Augh, I’m the worst and I totally missed this comment! Public transit in Ithaca isn’t half bad. I lived up by Cornell and would usually take a bus down and walk to physical therapy appointments since there’s a lot to do and see downtown, but I’m sure that a bus goes much closer to Island Health. Do you know where(ish) you’ll be living?

    Posted 7 years, 4 months ago
  5. * Anonymous says:

    Problem solved! I am living in Collegetown with a friend from home who actually goes to school here and who also happens to have a car. Sweet. I have only been to 2 appointments with Christine- she is SUPER nice. I am not entirely sure if the PT is going to work though…don’t feel much different after 2 weeks. I have tried just about all the major treatments (lido, amitryp., hormone creams, blah blah blah) except maybe gabapentin so i hope to god something suddenly gets better. I am seriously considering becoming a vulvodynia researcher when i grow up to fill the black hole of knowledge about causes/treatments I’ve witnessed since the start of this mess 6 months ago.

    I also want to thank you for writing such an awesome blog. There are times when I just start thinking about this crappy ‘condition’ that doctors are completely ignorant about, and I literally spend a Friday night doing ‘research’ online to try to find the piece of knowledge that could cure me. (I then also feel somewhat pathetic, since I am a 20 year old who should be out partying and not worrying about a defective vag). Usually, I don’t find any new knowledge, but I end up reading different blogs like yours which remind me that I am not alone and prove to me that it is possible to be a confident, gutsy young person even with vulvodynia.

    Stay strong!

    Posted 7 years, 4 months ago


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